Additional Resources

Additional Resources

Several organizations provide patients and families experiencing immunodeficiencies with extensive support, advocacy and education. These include:

  • HLH Support, a website dedicated to supporting and helping make sense of an HLH diagnosis


  • Primary Immunodeficiency, A publication from the National Institutes of Health designed to make PIs easier to recognize, and to cope with, by making them more familiar. It describes how these diseases arise, how they affect health, and how they can be treated.


Additional Organizations we Support related to bone marrow transplantation and medical research:

  • Be The Match Foundation, which helps patients who need a bone marrow or umbilical cord blood transplant find a donor and receive treatments